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Barbara's Ovarian Cancer Story Part II

Part II Conquering the Fear, Fighting the chemo. This guided exercise included
Cancer relaxation, healing messages, and
Ovarian Cancer: Process and Survival suggestions for picturing my immune cells
taking care of things and using the chemo
Post Surgery effectively. Before each chemo session,
Read Part I for information regarding even before they started the IV, he would
diagnosis and surgery...The next few do a relaxation exercise with me. This
weeks after my discharge from the ritual became a very important part of
hospital, were very busy. My sister, the process. By working on my "attitude"
Nance, and my mom decorated the house and towards the chemo and by connecting with
Christmas tree. My sister Lauren visited these parts of myself that can be
from Washington and cleaned, cooked and powerful self-healers, I felt I was
lent invaluable support to all of us. taking back control of what was
There were visits to the surgeon for happening. Feeling that you are part of
follow-up and the oncologist for the the healing process instead of a passive
initial visit. John and my sisters receiver of medications etc., is very
accompanied me. It was so very helpful to empowering.Rituals and routines are very
have someone else ask questions and write comforting, especially when you're
down information. It can be an experiencing stressful times. My "chemo
overwhelming experience, especially when ritual" evolved from the very first
you're a little "spaced out" on vicodin session. The night before, I meditated
for pain management, as I was. I signed and did my healing visualizations at
on to be part of a clinical study using bedtime. John drove me to the oncology
different combinations of medications for center. I selected my chair and we
eight instead of the normal six cycles. settled in with his relaxation exercise.
Laurie had brought a book with her that My sister, Nance, arrived bearing muffins
offered a lot of information on how to and silly magazines. After visiting and
deal with an ovarian cancer diagnosis and chatting, John left for work and Nance
subsequent treatments. One suggestion was and I munched muffins and laughed at the
to research clinical studies. There is a National Enquirer stories. About an hour
great deal of "cutting edge" research out before the infusion was completed, my
there but you may have to hunt for it, do brother, Tom, would arrive for a visit
your homework, and bring the information and to take me home. Somewhere in the
to your doctor. My oncologist's office session, my sister, Laurie, would call
was conducting a trial, I was accepted, from Washington to check in and often
and I was scheduled to begin treatment on John would "pop in" in his travels. I
December 21.Even though I was dreading always had company and felt lovingly
the whole process, I knew I had to supported. Sabrina included me in her
approach it in much the same way I did meditation every morning and my mom would
the surgery, almost like an athletic stop by the day after the session for tea
event or a race. I wanted to go in as and a chat. Every three weeks from
strong and as prepared as possible and December 21 through May 27, we followed
with a better "attitude."Attitude is this routine. The nurses and my family
defined as a manner of acting, feeling or got to know one another and we became a
thinking that shows one's disposition, real team!Returning to work seven weeks
opinion and mental set. We may not be after surgery was another normalizing
able to control a situation, but we can routine that made me feel like I was
choose our attitude about that situation- taking back my life. Except for the day
victim or fighter; passive or aggressive; of chemo and the following day, I've
depressed or striving toward joy and worked full time, feeling productive,
happiness; caught in the "why me's" or healthy and normal. My co-workers have
searching for the "what can I learn from been very supportive and caring. They
this." With the help of many people and even threw me a graduation party to
through much reading and research, my celebrate the completion of chemo.Even
"attitude-adjustment" process unfolded.A before my last chemo, I was researching
booklet entitled "Preparing for Chemo" what to do to prevent a recurrence of the
suggests several things that I disease. I found information on a
immediately put into action. clinical study for Ovarex, a vaccine
designed to prevent a recurrence of
1) Get your hair cut short so that when ovarian cancer. After many phone calls,
your hair starts falling out, it's less letters and haggling with my insurance
traumatic and won't clog the shower's company, I was accepted into a study
drain. (This worked for the drains but I being conducted at Stanford's Cancer
was still traumatized.) Center in Palo Alto. It involved monthly
infusions for the first three months and
2) If you plan to wear a wig, shop for then every twelve weeks for the rest of
it before starting chemo. My sisters and the year, with routine labs and CT scans.
my dear friend and hairdresser Patty, I've experienced only mild side effects
helped with both of these steps. Watching and feel fortunate to have access to one
my long hair fall to the floor was very more tool.This past year has been one of
hard and yet made me feel the tiniest bit lessons for me. I would have preferred
more in control of what was happening to the "universe" had given me a gentle tape
me. To my surprise, everyone loved my new on the shoulder instead of this Giant
hairdo. The compliments boosted my ego Thump on the head to let me know I had
when I really needed it. Nance and Laurie things to learn about myself and how "I
accompanied me to the wig shop. Laughter am" in the world. Here are some of the
is very good medicine-and we laughed a things I have learned from this
lot as we all played with the wigs before experience:
settling on two very nice ones. Four
hundred dollars later I was armed with my 1. Pay attention - perhaps if I had
hair prosthetics and a sore belly from agitated more forcefully with my doctor
laughing. At this writing, I'm sporting that something was NOT right, she would
my own very short hair after nine months have responded with more attention.
of wigs and hats. LISTEN to your body and trust your
intuition.
3) The booklet suggests having a dental
check up and cleaning before starting 2. Don't take anything for granted -
chemo. Also important is giving your home people, job, health, hair. When you face
a thorough cleaning and perhaps the loss of these things, you realize how
scheduling someone to come in once a week special people are, how the day-to-day
thereafter- a clean house can minimize routine of a job is a gift, how precious
exposure to infectious agents. good health is and even how much better a
"bad hair" day is than NO HAIR!
4) Building up strength through exercise
and a good diet can help minimize some of 3. There are a great many sources of
the side effects of chemo. This booklet invaluable information out there through
and other helpful literature, is people, libraries and the internet.
available through oncology offices and Taking advantage of these resources
offers good practical information. I also allowed me to create a comprehensive plan
found the library and the internet to be to restore my health and fight the
good resources. disease using a combination of Western
Shortly after my homecoming, from the and alternative therapies.
hospital, I received a telephone call
from Lindy, a volunteer with the Cancer 4. We do have choices in how we deal
Society (set up by my husband and the with a crisis - probably the best choice
cancer support staff at the hospital.) for me was to reach out and ask for help.
She had been diagnosed and treated for The more people I told about my health
Stage IIIc ovarian cancer seven years issues, the more positive energy came my
ago. Hearing from her gave me a real way. I felt empowered rather than
boost and some good tips for dealing with vulnerable and armed with my helmet (a
the upcoming chemo. She shared her wig, which, by the way, I got complements
experiences with surgery, hair loss and on) and my armor (acupuncture,
complete recovery! She is still cancer supplements, chemo, prayers and
free! In addition to advice on make-up to visualization) I was ready to do battle.
camouflage the fact that one has no I was "Warrior Princess" instead of
eyebrows or eyelashes, she told me how cancer patient.
helpful acupuncture was for her. She felt
that it really minimized some of the 5. Laughter is GOOD MEDICINE!
chemo side-effects and "rebalanced" her
body's energy. I had had a few sessions At this writing, my labs and CT scans
of acupuncture many years ago, and I are completely normal. I'm back to my
immediately knew that this would be right normal routines of work and exercise. I'm
for me. I believe in its efficacy and sporting a "Jamie Lee Curtis" hairdo. I
definitely feel the sessions have been am excited about decorating and shopping
very beneficial.My first acupuncture for Thanksgiving and when we all come
session was four days after the first together, we'll have a lot to be thankful
chemo treatment. The meds they gave me to for! Before we dig into our feast, I'll
prevent nausea worked very well. I didn't be asking each person to write on a piece
have much of an appetite and felt a of paper, one thing that they are
little achy and tired but the only real grateful for. Each of us will then
side effect I experienced was a terrible, withdraw one of these papers from the
hand-wringing itching and tingling in my basket and try to guess who wrote the
hands and feet. Amy, my acupuncturist, message. It will be easy to guess mine.
has worked with several people undergoing I'm grateful for all the love and support
chemo, is very knowledgeable, and had a from my family and friends (with a
good treatment plan in place for me. I special thanks to my son, Matt, and my
scheduled to see her 2 days before and 4 husband for shaving their heads to
days after every chemo session. After my support me and to my son, Mike, and his
first visit with her, I did feel better, band for dedicating songs to me at
more energized and the itching had concerts and their fund raising for the
definitely dissipated a good deal. She Cancer Society.) I'm grateful for the
gave me some suggestions on supplements prayers and best wishes that came my way
and some Chinese herbs to use.The side from people I don't even know. I thank
effect of itching, burning and tingling you!!! Well, of course, that's more than
is called neuropathy and is fairly common one thing on my piece of paper but so
with the types of chemo protocol I was what! It's time to celebrate!Happy
on. After my second and third sessions, Thanksgiving 2004 and celebrate every day
the symptoms worsened! I turned to the of your life.Barbara's Complete Ovarian
internet to learn more about neuropathy Cancer Fighting Supplement List:Three
and what, if anything, I could do about Imperial Mushroom Capsules - available
it. I found an article by Cindy H. through acupuncture office
Makencon, website: entitled "coping-Tips
for dealing with neuropathy." She offered A) Reishi- Immuno stimulant: enhances
a great deal of helpful information immune system; use is sanctioned by the
including reports of studies on the Japanese Health Ministry as an adjunct
benefits of taking fairly large doses of treatment for cancer; Increases activity
L-Glutamine Sulfate and Chondroitin. I of chemotheraputic agents and reduces
forwarded this information onto Carolyn, adverse effects such as nausea, decreased
the research nurse in charge of my white blood cell counts; helps protect
clinical study, and she shared the the liver against damage caused by viral,
information with the oncologist. I had drug and environmental toxins.B) Shitaki-
already started taking L-Glutamine when I strengthens immune system response;
met with him. He had further researched improves survival times of cancer
and developed a new treatment plan for me patients when used concurrently with
which included large doses of chemo.C) Maitake- best known for cancer
L-Glutamine, a change in one of the chemo fighting properties; many doctors in
meds, and the addition of a medication Japan use it to lower blood pressure and
called neurontin. The combination of all blood lipids; effective as an anti-tumor
these things worked! The neuropathy agent and immune system
gradually subsided and I've had no modulator.Echinacia- used in Germany
further problems.I believe a few other along with chemo in the treatment of
factors contributed to my being able to cancer. May enhance white blood cell
handle the chemo pretty well. I continued counts in persons undergoing chemo.Cat's
to increase my exercise regimen, Claw- reduces side effects of chemo; used
progressing to walking everyday and then in clinical practice in Europe for cancer
back to the gym for step-classes, albeit & HIV; has important immune enhancing
modified, and lifting light weights. properties; helps increase the number of
Exercise builds muscle strength, T-cells, the true soldiers of the immune
increases oxygen and blood flow and for system. In Austria, it is used together
me, was and is a real physical and mental with conventional treatment (chemo,
energy boost.I came across a book radiation &/or surgery) to treat hundreds
entitled: "Herbal Therapy & Supplements- of cancer patients per year.Graviola-
a Scientific and Traditional Approach" scientists have been studying this herb
written by Merrily A. Kuhn, RN, Ph.D. and since the 1940's - four studies were
David Winston, a herbalist and published in 1998 re: significant
ethnobiologist. The book was part of an anti-tumor properties and selective
at-home study course that I needed to toxicity against various types of cancer
complete for my RN Continuing Education cells (without harming healthy cells;
Credits. The book offers a comprehensive Purdue University has conducted a great
guide to many common and some less common deal of research on the Annonaceous
herbs and supplements, their uses, acetogenins family to which graviola
adverse effects, contraindications, and belongs) much of which has been funded by
drug-herb interactions. After careful the National Cancer Institute or the
research, I started using several herbs National Institute of
and supplements designed to minimize Health.Acidophyllis- rebalances
chemo side effects and boost my immune intestinal flora (especially important
system. I was careful to use things that when you're taking a lot of
do not stimulate estrogen in the body as medications.)Multivitamins with Vitamin
my cancer was estrogen-receptor positive. ECalcium SupplementIP-6 with Insositol-
I started taking these supplements one or has been studied extensively for over 20
two things at a time in smaller doses in years; has powerful effects on the immune
order to monitor any unfavorable system.Wheat Grass Juice- increases
reactions, before adding more. Most hemoglobin; rebuilds the blood; improves
importantly, I notified my doctor that I body's ability to heal wounds; washes
was taking supplements and having drug deposits from the body; neutralizes
acupuncture.At the end of this article, I toxins and carcinogens in the body.Green
will offer a complete list of the and White Tea- Chinese believe green tea
supplements and herbs that I have been is a cure for cancer and a longevity
using and some information regarding the tonic; boosts immune system function;
rationale for each of these additions.For research being done all over the world
several months, our kitchen counter and in the US by the National Cancer
resembled a drug and supplement store. I Institute re: anti-tumor activity. Both
had to write up a daily schedule of what green and white tea are excellent
to take when. It was worth it! Once the antioxidants.Website for researching
neuropathy was under control, I tolerated herbs- Plant Database Raintree NutritionI
the remainder of the chemo treatments used the guided relaxations
pretty well. I was able to work full time visualizations CD's from the Stress
and exercise, and my appetite and energy Education 1. #209 Stress Management for
levels were good. Physically, Pre and Post-op Survival
acupuncture, exercise, diet, and 2. #208 Stress Management for
supplements were, and still are, valuable HealingReference:
tools which helped me deal with the chemo Health Update from SELF Magazine by
and recover from its serious effects.On Jennifer Nelson November, 2004
another level, the emotional and Ovarian cancer: a not-so-silent
spiritual aids were an even more powerful killer"Early diagnosis is crucial. When
part of the healing process. Previously, disease is caught before it spreads, 80
I mentioned my visualizations regarding percent of women will survive."by Barbara
pre and post operative healing and seeing Ehlers-Mason, RN and L. John Mason,
myself healthy and cancer free. Now, it Ph.D.Written in November, 2004, one year
was time to take it a step further and after the Surgery for Ovarian Cancer, in
include it as a powerful adjunct to the November, 2003Stress Education Center
chemo medications. Rather than seeing the (707) 795-2228 website: John Mason,
meds as a poison, I started to visualize Ph.D. is the author of the best selling
it as "nectar from the gods," washing "Guide to Stress Reduction." Since 1977,
through me and being taken up by my he has offered Executive Coaching and
immune cells as a potion to destroy Training. His wife, Barbara Ehlers-Mason,
cancer cells. A few weeks before my first RN, was diagnosed in October, 2003 with
treatment, I read an article about a Stage III Ovarian Cancer.Learn everything
young local girl who had battled cancer that you can if you think you or someone
at age 16. She wrote a book about her you know has Ovarian Cancer. Be prepared
experience and included her thoughts on to fight.Please visit the Stress
seeing her chemo as "nectar from the Education Center's website at for
gods." I admired her outlook and articles, free ezine signup, and learn
incorporated it into my work. My husband, about the new telecourses that are
John, created a special tape for me to available.Please take good care of
listen to while receiving the infusion of yourself!




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